empowering the severely brain injured and their families via support, understanding and a network of care

Privacy Policy

Brain Injury is BIG (“We”) are committed to ensuring that your privacy is protected. This policy sets out the basis on which any personal data we collect from you, or that you provide to us will be processed by us.

This policy also provides information on how you can instruct us if you prefer to limit the use of your personal information as well as the procedures that we have in place to safeguard your privacy. Please read this policy carefully to understand our views and practices regarding your personal data and how we will treat it.

For the purpose of the Data Protection Act 1998 and the General Data Protection Regulations 2018, the data controller is Brain Injury is BIG (a registered charity). In relation to all your personal data that we hold, we will observe our obligations under the Data Protection Act 1998 and/or the General Data Protection Regulations 2018.

Information we may collect from you

When you register with the online forum or otherwise contact us through the website at www.braininjuryisbig.org.uk or otherwise submit an application for a grant (“the website/site”), we need to know your name, postal address, and telephone number. We also need to know how you would like us to contact you, and brief details of your reason for contacting us.
If you post any content on the user forum or on our Twitter feed, Facebook page or any other social media platform we may use, that information (including your user name) will be held by us and will be available to be seen on our website and the relevant social media platform. In all other circumstances, we undertake to keep information about you confidential and in a way which does not enable you to be identified from the information displayed on our site.

If you notify us by e-mail or other written communication that any of the information which we hold about you is incorrect or misleading, we will take prompt action to correct or amend the information. You may do this by sending an e-mail to [email protected]

Uses of personal information

We will acquire, store, process, use and disclose personal data about you:

  • if collected through our Facebook page, Twitter feed or any other social media platform we may use from time to time.
  • if collected through a general enquiry online , by telephone or or any other posting on our website user forum;

We occasionally run events and promotional activities jointly with other trusted professional parties. While we do not share our contact database with them, nor with other guests to our events, if you accept an invitation, your name may be included in an attendee list which is shared with our co-hosts and with other guests.

We may from time to time appoint service providers, such as IT, advertising and marketing professionals, printers and other such parties, to provide services to us (“data processors”). This may involve disclosing your personal data to them to enable it to be processed for a purpose which is consistent with this privacy policy. We will ensure that any appointments of data processors on our behalf will comply with the Data Protection Act 1998 and/or General Data Protection Regulations 2018.

We may be forced to disclose information by the government or other law enforcement agencies or in connection with the investigation of unlawful activities. Third parties may also unlawfully intercept or access transmission or private communications. These therefore are exceptions to our policy of maintaining the privacy and confidentiality of your personal information.

If our charity is transferred or merged with another charity undertaking the same or similar charitable aims, your details may be disclosed to our advisers and any prospective merger partner charities and their advisers and will be passed on to the merged registered charity.

Except as explained above, we will not disclose your personal data to any third parties for any other purpose.

IP addresses

We may collect information about your computer, including where available your IP address, operating system and browser type, for system administration and internal analysis. This is statistical data about our users’ browsing actions and patterns and does not identify any individual.


We use cookies on this website to help it operate effectively. Cookies are small data files, applied by the majority of websites, which transfer text-only information to the hard drive of your computer.

We use analytics cookies to collect information on how visitors interact with our website and to enable us to maintain and develop it. The data gathered, which includes details of the number of visitors to the site and the pages they access, is in anonymous form. It does not identify individual users.

Below is a list of the cookies we have set and the reasons for doing so:

You may control the cookies used by our website by modifying the settings in your browser – view the help menu to change your cookie preferences. If cookies are disabled, this may mean that you are not able to take full advantage of all the features on our site.

For more detailed information about cookies and how they can be managed and deleted, please visit http://www.allaboutcookies.org/.

To access the Google Analytics opt out browser, please visit https://tools.google.com/dlpage/gaoptout. By choosing this option, you will block Google Analytics across all websites.

Storing your personal information

We store all information you provide to us on our secure servers. Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to our site; any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access.

Your consent

By submitting your personal information, you consent to the use of that information as set out in this policy. If you provide us with sensitive information (such as your financial situation or state of health), you expressly consent to our using that information for the purpose given.

Owing to the global nature of the Internet infrastructure, the information you provide may be transferred to countries outside the European Economic Area that do not have similar protection in place regarding your personal data and its use as set out in this policy. By submitting your information you consent to these transfers.

Access to information

You have the right to access information held by us about you. Your right of access can be exercised in accordance with the Data Protection Act 1998 and/or the General Data Protection Regulations, without charge.

Changes to our privacy policy

If we change our privacy policy we will post the changes on this page, so that you may be aware of the information we collect and how we use it at all times. We will also e-mail you should we make any changes so that you may consent to our use of your information in that way. Continued use of the service will signify that you agree to any such changes.


Questions, comments and requests regarding this privacy policy are welcomed and should be addressed to [email protected]